Discrimination against disabilities and protocols for the allocation of scarce resources in the COVID-19 pandemic

Authors

  • Fernando Maurício da Silva Professor na Faculdade Municipal de Palhoça

DOI:

https://doi.org/10.5007/1677-2954.2023.e98343

Abstract

The possible relationship between discrimination against disabled people and protocols for allocating scarce resources in the COVID-19 pandemic will be investigated. The specific problem concerns the accusation of discrimination against people with disabilities in the use of ECOG in the AMIB protocol. The starting point is a brief phenomenological description of the limits of ECOG in comparison to other assessment methods. Next, the biomedical conception of disability and the difficulties this implies for models of justice are discussed. Then the problems in the concepts of functionality and resources themselves stand out, in addition to the relationship between functionality and fragility. From this it becomes possible to consider the relationship between justified statistical discrimination and formal equality of opportunities. This will involve analyzing the relationship between relational and distributive justice, on how the disabled person is understood as a bad user ex ante of health resources. It concludes by clarifying how epistemic injustice is a central issue.

Author Biography

Fernando Maurício da Silva, Professor na Faculdade Municipal de Palhoça

Fenando Maurício da Silva é professor e pesquisador na área de filosofia e ética, em cursos de graduação e pós-graduação, na Faculdade Municipal de Palhoça (FMP) Contato: fernando.silva@fmpsc.edu.br. Orcid: https://orcid.org/0000-0002-4542-3766.

References

ALIBERTI, M.J.R.; SZLEJF, C.; AVELINO-SILVA; SUEMOTO, C.K.; APOLINARIO, D.; DIAS M.B., et al. COVID-19 is not over and age is not enough: Using frailty for prognostication in hospitalized patients. J Am Geriatr Soc.:69(5):1116–27, 2021.

AMIB. Associação de Medicina Intensiva Brasileira (AMIB), ABRAMEDE (Associação Brasileira de Medicina de Emergência, SBGG (Sociedade Brasileira de Geriatria e Gerontologia) e ANCP (Academia Nacional de Cuidados Paliativos): Recomendações de alocação de recursos em esgotamento durante a pandemia por COVID-19. Maio de 2020b.

ANAND, S. & HANSON, K. “Disability-Adjusted Life Years: A critical review”, Journal of Health Economics, 16: 685–702, 1997.

BARNARTT, Sharon, SCHRINER, Kay; SCOTCH, Richar. Advocacy and Political Action, Albrecht, Seelman, and Bury: 430–449. 2001

BERENGUER J, BOROBIA A.M.; RYAN P.; RODRÍGUEZ-BAÑO J.; BELLÓN J.M.; JARRÍN, I, et al. Development and validation of a prediction model for 30-day mortality in hospitalised patients with COVID-19: The COVID-19 SEIMC score. Thorax.;76(9):920–9, 2021.

BRODERICK, J.E.; MAY, M.; SCHWARTZ, J.E.; LI, M.; MEJIA, A.; NOCERA, L.; KOLATKAR, A.; UENO, N.T.; YENNU, S.; LEE, J.S.H.; HANLON, S.E.; COZZENS PHILIPS, F.A.; SHAHABI, C.; KUHN, P.; NIEVA, J. Patientreportedoutcomescan improve performance status assessment: a pilotstudy. J Patient Rep Outcomes: Jul 16;3(1):41, 2019.

BELS, et al. Decreased serial scores of severe organ failure assessments are associated with survival in mechanically ventilated patients; the prospective Maastricht Intensive Care Covid cohort. J Crit Care: (62): 38- 45, 2021.

BUCHANAN, Allen; BROCK, Dan W.; DANIELS, Norman; WIKLER, Daniel. Do acaso à escolha - Genética e Justiça. Cambridge: Cambridge University Press, 2000.

CASTRO, Mariana Lopes de; PASCOAL, Pedro Guimarães. FORESEE: Frailty - ORgan failure - Established clinical Status - Endpoints Estimation in hospitalized COVID patients. Universidade Federal do Rio Grande do Sul. Trabalho de conclusão de especialização. RS: 2023.

CURETON, A. &BROWNLEE, k. 2009, “Introduction”, in Brownlee and Cureton: 1–13, 2009.

DALL´AGNOL, Darlei. Ciclos De Vida Ou Performance? Reflexões bioéticas sobre triagem durante a pandemia da Covid-19. Filosofia e o mundo da vida. Caxias do Sul, RS: Educs, 2023

DAVIES, Ben. Medical need and health need. Clinical Ethics 18 (3):287-291, 2023.

DANIELS, N. Just Health Care. Cambridge: Cambridge University Press; 1985.

DOYAL, L.; GOUGH, I. A theory of human needs. Critical Social Policy, 4(10), 6–38, 1984.

HARRIS, John. The Value of Life. Boston: Routledge & Kegan Paul. 1985

HARRIS, J., 1986, “QALYfying the Value of Life”, Journal of Medical Ethics, 13(3): 117–123.

HISSA PNG, et al. Análise comparativa entre dois escores na previsão de mortalidade em unidade de terapia intensiva. Revista Brasileira de Clínica Médica: 11(1): 21-26, 2013.

JOEBGES. S.; BILLER-ANDORNO, N. Ethics guidelines on COVID-19 triage—an emerging international consensus. Crit Care: Dec 6;24(1):201, 2020.

KARNOFSKY, D. A., ABLEMAN, W. H., CRAVER, L. F., & BURCHENAL, J. H. The use of nitrogen mustard in the palliative treatment of carcinoma. Cancer, 1, 634–656, 1948.

KRETZER, L.; BERBIGIER, E.; LISBOA, R.; GRUMANN, A.C.; ANDRADE, J. Protocolo AMIB de alocação de recursos em esgotamento durante a pandemia por COVID-19.1–24, 2020.

LEWIS, E.G.; BRECKONS, M.; LEE, R.P.; DOTCHIN, C.; WALKER, R. Rationing care byfrailty during the COVID-19 pandemic. Age Ageing. Jan8;50(1):7–10, 2021.

Matheson, L.N. The functional capacity evaluation. In: Andersson & S.

Demeter & G. Smith (Eds.), editor. Disability Evaluation. 2nd Editio. Chicago, IL: Mosby Yearbook; 2003.

MIKOŁAJCZYK, Barbara. Polish Yearbook of international law. International law and ageism, v. XXXV, 2015.

MCKIE, John; RICHARDSON, Jeff; SINGER, Peter; KUHSE, Helga. The Allocation of Health Care Resources: An Ethical Evaluation of the ‘QALY’ Approach, Aldershot, UK: Ashgate, 1998

MORAES, E.N.; PEREIRA, A.; AZEVEDO, R.S.; MORAES, F.L. Avaliação multidimensional do idoso. Curitiba: Secretaria de Estado da Saúde do Paraná; 2018

NIELSEN, L. Disability Discrimination and Patient-Sensitive Health-Related Quality of Life. Camb Q Healthc Ethics. Nov 4:1-12, 2022.

SMITH, D. M., SHERRIFF, R. L., DAMSCHRODER, L., LOEWENSTEIN, G., &UBEL, P. A. Misremembering colostomies? Former patients give lower utility ratings than do current patients. Health Psychology, 25(6), 688–695, 2006.

SINGER, Peter, 1983, “Sanctity of Life or Quality of Life?”, Pediatrics, 72: 128–29.

TAHTASAKAL, C.A.; ONCUL, A.; SEVGI, D.Y.; CELIK, E.; OCAL, M.; TURKKAN, H.M.; et al.Could we predict the prognosis of the COVID‐19 disease? J Med Virol, Apr 5;93(4):2420–30, 2021.

thomas, Carol. “Rescuing a Social Relational Understanding of Disability”, Scandinavian Journal of Disability Research, 6(1): 22–36, 2004.

TYRRELL, C.S.B.; MYTTON, O.T.; GENTRY, S.V.; THOMAS-MEYER, M.; ALLEN, J.L.Y.; NARULA, A.A., et al. Managing intensive care admissions when there are not enough beds during the COVID-19 pandemic: A systematic review. Vol. 76, Thorax: p. 302–12, 2021.

TOMRUK, M.; KARADIBAK, D.; YAVUZŞEN, T.; AKMAN, T. Predictors of functional capacity in colorectal cancer patients. Support Care Cancer. Sep 8;23(9):2747–54, 2015.

VALUING, D. Health: Well-Being, Freedom, and Suffering. Oxford: Oxford University Press; 2015:90–6

VEACH, Robert. The Foundations of Justice, Nova York: Oxford University Press, 1986.

WASSERMAN, D. “Distributive Justice”, in Silvers, Wasserman, and Mahowald 1998: 147-207, 1998.

WENDELL, S. The Rejected Body: Feminist Philosophical Reflections on Disability, London: Routledge, 1996.

WILLIAMS, Alan. “Economics Of Coronary Artery Bypass Grafting.” British Medical Journal (Clinical Research Edition), vol. 291, no. 6491, 1985, pp. 326–29. JSTOR,

WILLIAMS, A. Ethics and Efficiency in the Provision of Health Care. Royal Institute of Philosophy Lecture Series: 23:111-126, 1988.

WOLFF, Jonathan. “Cognitive Disability in a Society of Equals”, Metaphilosophy, 40(3–4): 402–415, 2009.

Published

2024-03-11

Issue

Section

Dossiê Bioética, Justiça Distributiva e Pandemias