Autossacrifício feminino durante o sofrimento de câncer de mama
DOI:
https://doi.org/10.1590/1806-9584-2022v30n377317%20Palavras-chave:
Neoplasias da Mama, Autossacrifício, Gênero, Feminismos, EtnografiaResumo
Explorar os padrões de comportamento socialmente construídos e baseados no gênero
associados ao autossacrifício de mulheres jovens durante o câncer de mama. Estudo qualitativo descritivo realizado na cidade de Neiva, Departamento de Huíla (Colômbia), durante 2018. Participaram 15 mulheres diagnosticadas com câncer, de 45 anos de idade ou menos. As informações foram coletadas a partir de um grupo de discussão e dez entrevistas semiestruturadas. Os dados foram tratados por meio de análise temática. Surgiram três temas: “antes de tudo, cuidar dos filhos e da família”, “ocultar a dor física e emocional” e “não se converter em sobrecarga para a família”. Apesar da doença, a mulher deve continuar exercendo os papéis socialmente estabelecidos para o gênero feminino, priorizando as necessidades dos outros e fazendo-se cargo das suas.
Downloads
Referências
ALLEN, Katherine. “Feminist Theory in Family Studies: History, Reflection, and Critique”. Journal of Family Theory & Review. New Jersey, v. 8, n. 2, p. 207-224, junio, 2016. Disponible en https://onlinelibrary.wiley.com/doi/abs/10.1111/jftr.12133. Consultado el 05/05/2020.
BAHR, Howard; BAHR, Kathleen. “Families and Self-Sacrifice: Alternative Models and Meanings for Family Theory”. Social Forces. Oxford, v. 79, n. 4, p. 1231-1258, junio, 2001. Disponible en https://www.jstor.org/stable/2675471. Consultado el 23/12/2019.
BARKIN, Jennifer; WISNER, Katherine. “The role of maternal self-care in new motherhood”. Midwifery. v. 29, n. 9, p. 1050-1055, septiembre, 2013. Disponible en https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7081756/. Consultado el 2/10/2019.
BRIONES, Erica; VIVES, Carmen.; GOICOLE, Isabel. “‘I’m not the woman I was’: Women’s
perceptions of the effects of fibromyalgia on private life”. Health Care for Women International. Philadelphia, v. 37, n. 8, p. 836-854, mayo, 2016. Disponible en https://www.tandfonline.com/doi/abs/10.1080/07399332.2016.1178265?journalCode=uhcw20. Consultado el 11/06/2020.
CIRIA, Laura; JIMÉNEZ, Paula; PALACÍN, María; ANTOÑANZAS, Mónica, et al. “Breast cancer
patient experiences through a journey map: A qualitative study”. PloS one. San Francisco, v.
, n. 9, e0257680, septiembre, 2021. Disponible en https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8457460/. Consultado el 10/012/2021.
CLARKE, Victoria; BRAUN, Virginia. “Teaching thematic analysis: Overcoming challenges and
developing strategies for effective learning”. Psychologist. London, v. 26, n. 2 p. 120-123,
junio, 2013. Disponible en https://uwe-repository.worktribe.com/output/937596. Consultado el 09/04/2020.
COLOMBIA. Ministerio de salud. Resolución 8430 de 04 de octubre de 1993: por la cual se
establecen las normas científicas, técnicas y administrativas para la investigación en salud.
Bogotá: Ministerio de salud, 1993.
COOMBE, Jacqueline; LOXTON, Deb; TOOTH, Leig; BYLES, Julie. “‘I can be a mum or a professional, but not both’: What women say about their experiences of juggling paid employment with motherhood”. Australian Journal of Social Issues. New Jersey, v. 54, n. 3, p. 305-322, septiembre, 2019. Disponible en https://onlinelibrary.wiley.com/doi/abs/10.1002/ajs4.76. Consultado el 09/04/2020.
DESREUX, Joëlle. “Breast cancer screening in young women”. European Journal of Obstetrics
and Gynecology and Reproductive Biology. Birmingham, v. 230, p. 208-211, noviembre, 2018.
Disponible en https://onlinelibrary.wiley.com/doi/abs/10.1002/ajs4.76. Consultado el 10/012/2021.
GHAEMI, Seyede; KESHAVARZ, Zohreh; TAHMASEBI, Sedigheh; AKRAMI, Majid; et al. “Explaining Perceived Priorities in Women with Breast Cancer: A Qualitative Study”. Asian Pacific journal of cancer prevention. Bangkok, v. 20, n. 11, p. 3311-3319, noviembre, 2019. Disponible en https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7063021/. Consultado el 10/012/2021.
GILLIGAN, Carol. In a different voice: Psychological theory and women’s development.
Cambridge: Harvard University Press, 1982.
GLOBAL CANCER OBSERVATORY. Estimated number of new cases in 2020, worldwide, females, all ages, c2020. 2020. Disponible en https://bit.ly/3iFZkzK. Consultado el 01/12/2021.
HOLST-HANSSON, Annette; IDVALL, Ewa; BOLMSJÖ Ingrid; WENNICK, Anne. “Hoping to reach a safe haven - Swedish families’ lived experience when a family member is diagnosed with breast cancer”. European Journal of Oncology Nursing. v. 31, p.52-58, octubre, 2017. Disponible en https://www.ejoncologynursing.com/article/S1462-3889(17)30230-2/fulltext. Consultado el 10/12/2021.
IDDRISU, Merry; AZIATO, Lydia; OHENE, Lilian. “Socioeconomic impact of breast cancer on young women in Ghana: A qualitative study”. Nursing open. New Jersey, v. 8, n. 1, p. 29-38, octubre, 2020. Disponible en https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7729654/. Consultado el 01/12/2021.
INHESTERN, Laura; BERGELT, Corinna. “When a mother has cancer: strains and resources of
affected families from the mother’s and father’s perspective-a qualitative study”. BMC women’s health. v. 18, n. 1, p. 72, mayo, 2018. Disponible en https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5970502/. Consultado el 01/12/2021.
JACK, Dana; JACK, Alisha. “Culture, Self-Silencing, and Depression: A Contextual-Relational
Perspective”. In: JACK, Dana; JACK, Alisha (Ed). Silencing the self across cultures: Depression and gender in the social world. New York: Oxford University Press NY, 2010. p. 3-17.
JACK, Dana. Silencing the self: Women and depression. Cambridge: Harvard University Press, 1991.
JANSON, Diana; HARMS, Craig; HOLLETT, Ross; SEGAL, Robert. “Differences between Men and Women Regarding Early Maladaptive Schemas in an Australian Adult Alcohol Dependent Clinical Sample”. Substance Use & Misuse. Philadelphia, v. 54, n. 2, p. 177-184, noviembre, 2019. Disponible en https://www.tandfonline.com/doi/abs/10.1080/10826084.2018.1480038?journalCode=isum20. Consultado el 01/12/2021.
LALAYIANNIS, Leonie; ASBURY, Nicky; DYSON, Graham; WALSHE, Amanda. “How do women with secondary breast cancer experience telling their adolescent children about their diagnosis?” Journal of Health Psychology. London, v. 23, n. 9, p. 1223-1233, junio, 2016. Disponible en https://journals.sagepub.com/doi/10.1177/1359105316648484?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed. Consultado el 10/12/2020.
MACKENZIE, Catherine Ruth. “‘It is hard for mums to put themselves first’: How mothers diagnosed with breast cancer manage the sociological boundaries between paid work, family and caring for the self”. Social Science & Medicine. Oxford, v. 117, p. 96-106, septiembre, 2014. Disponible en https://www.sciencedirect.com/science/article/pii/S0277953614004729?via%3Dihub. Consultado el 10/12/2020.
MAHAFFEY, Brittain; TILLEY, Jacqueline; MOLINA, Lucero et al. “How am I going to make it through pregnancy? A qualitative examination of prenatal maternal stress”. Birth, California, v. 00, p. 1-8, octubre, 2021. Disponible en https://onlinelibrary.wiley.com/doi/10.1111/birt.12598. Consultado el 01/12/2021.
MOSER, Albine; KORSTJENS, Irene. “Series: Practical guidance to qualitative research. Part 3:
Sampling, data collection and analysis”. The European journal of general practice. London,
v. 24, n. 1, p. 9-18, diciembre, 2018. Disponible en https://www.ncbi.nlm.nih.gov/pmc/articles/
PMC5774281/. Consultado el 03/06/2020.
PALUCH-SHIMON, Shani; PAGANI, Olivia; PARTRIDGE, Anna; ABULKHAIR, Omalkhair et al. “ESO-ESMO 4th International Consensus Guidelines for Breast Cancer in Young Women (BCY4)”. Annals of Oncolgy. London, v. 31, n. 6, p. 674-696, junio, 2020. Disponible en https://www.annalsofoncology.org/article/S0923-7534(20)36363-8/fulltext. Consultado el 06/12/2021.
PRITLOVE, Cheryl; SAFAI, Parissa; ANGUS, Jan; ARMSTRONG, Pat et al. “‘It’s Hard Work’: A Feminist Political Economy Approach to Reconceptualizing ‘Work’ in the Cancer Context”. Qualitative Health Research. California, v. 29, n. 5, p. 758-773, abril, 2019. Disponible en https://journals.sagepub.com/doi/10.1177/1049732318803885?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed. Consultado el 20/04/2020.
QUINN, Brenna; FANTASIA, Heidi Collins. “Forming Focus Groups for Pediatric Pain Research in Nursing: A Review of Methods”. Pain management nursing. Philadelphia, v. 19, n. 3, p. 303-312, junio, 2018 Disponible en https://www.painmanagementnursing.org/article/S1524-9042(17)30440-X/fulltext. Consultado el 11/06/2020.
RADINA, M. Elise; ARMER, Jane; STEWART, Bob. “Making self-care a priority for women at risk of breast cancer-related lymphedema”. Journal of family nursing. California, v. 20, n. 2, p. 226-249, mayo, 2014. Disponible en https://journals.sagepub.com/doi/10.1177/1074840714520716?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed. Consultado el 20/04/2020.
RAJAGOPAL, Lalithambigai; LIAMPUTTONG, Pranee; MCBRIDE, Kate. “The Lived Experience of
Australian Women Living with Breast Cancer: A Meta-Synthesis”. Asian Pacific Journal of Cancer Prevention. Bangkok, v. 20, n. 11, p. 3233-3249, noviembre, 2019. Disponible en https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7062985/. Consultado el 06/12/2021.
REES, Sophie; YOUNG, Annie. “The Experiences and Perceptions of Women Diagnosed with Breast Cancer during Pregnancy”. Asia Oncology Nursing Society. Mumbai, v. 3, n. 3, p. 252-258, julio, 2016. Disponible en https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5123527/. Consultado el 06/12/2021.
SINCLAIR, Michelle; SCHOFIELD, Penelope; TURNER, Jane; RAUCH, Paula et al. “Maternal breast
cancer and communicating with children: A qualitative exploration of what resources mothers
want and what health professionals provide”. European Journal of Cancer Care. Oxford, v. 28,
n. 6, e13153, agosto, 2019. Disponible en https://onlinelibrary.wiley.com/doi/10.1111/ecc.13153. Consultado el 20/04/2020.
SULIK, Gayle. “On the Receiving End: Women, Caring, and Breast Cancer”. Qualitative Sociology. New York, v. 30, n. 3, p. 297-314, marzo, 2007. Disponible en https://link.springer.com/article/10.1007/s11133-007-9057-x. Consultado el 05/05/2019.
SULIK, Gayle. “The Balancing Act: Care Work for the Self and Coping with Breast Cancer”. Gender & Society. California, v. 21, n. 6, p. 857-877, diciembre, 2007a. Disponible en https://journals.sagepub.com/doi/pdf/10.1177/0891243207309898. Consultado el 05/05/2019.
SULIK, Gayle. “What cancer survivorship means”. Virtual Mentor. Chicago, v. 15, n. 8, p. 697-703, agosto, 2013. https://journalofethics.ama-assn.org/article/what-cancer-survivorship-means/2013-08. Consultado el 05/05/2019.
SUNG, Hyuna; FERLAY, Jacques; SIEGEL, Rebecca; LAVERSANNE, Mathieu et al. “Global cancer
statistics 2020: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in
countries”. Cancer Journal for Clinicians. New York, v. 71, n. 3, p. 209-249, mayo, 2021.
Disponible en https://acsjournals.onlinelibrary.wiley.com/doi/10.3322/caac.21660. Consultado el 06/12/2021.
THOMPSON, Linda. “Feminist Methodology for Family Studies”. Journal of Marriage and Family. New Jersey, v. 54, n. 1, p. 3-18, febrero, 1992. Disponible en https://www.jstor.org/stable/353271. Consultado el 05/05/2019.
THOMPSON, Linda; WALKER, Alexis. “The Place of Feminism in Family Studies”. Journal of Marriage and Family. New Jersey, v. 57, n. 4, p. 847-865, noviembre, 1995. Disponible en https://www.jstor.org/stable/353407. Consultado el 05/05/2019.
WILKINSON, Sue. “Feminist research traditions in health psychology: breast cancer research”. Journal of Health Psychology. London, v. 5, n. 3, p. 359-372, mayo, 2000. Disponible en https://journals.sagepub.com/doi/10.1177/135910530000500308?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed. Consultado el 20/10/2018.
XU, Jiehui; WANG, Xiyi; CHEN, Mengjie; SHI, Yiwen; “Family interaction among young Chinese
breast cancer survivors”. BMC family practice. London, v. 22, n. 1, p. 122, junio, 2021. Disponible en https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8218435/. Consultado el 06/12/2021.
YONELINAS, Andrew; RITCHEY, Maureen. “The slow forgetting of emotional episodic memories: an emotional binding account”. Trends in cognitive sciences. Oxford, v. 19, n. 5, p. 259-267, mayo, 2015. Disponible en https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4414918/. Consultado el 20/10/2018.
ZINN, Maxine. “Feminism and Family Studies for a New Century”. The Annals of the American
Academy of Political and Social Science. California, v. 571, p. 42-56, septiembre, 2000. Disponible en https://www.jstor.org/stable/1049133. Consultado el 20/12/2028.
Arquivos adicionais
Publicado
Como Citar
Edição
Seção
Licença
Copyright (c) 2022 Revista Estudos Feministas
Este trabalho está licenciado sob uma licença Creative Commons Attribution 4.0 International License.
A Revista Estudos Feministas está sob a licença Creative Commons Atribuição 4.0 Internacional (CC BY 4.0) que permite o compartilhamento do trabalho com reconhecimento de autoria e publicação inicial neste periódico.
A licença permite:
Compartilhar (copiar e redistribuir o material em qualquer suporte ou formato) e/ou adaptar (remixar, transformar, e criar a partir do material) para qualquer fim, mesmo que comercial.
O licenciante não pode revogar estes direitos desde que os termos da licença sejam respeitados. Os termos são os seguintes:
Atribuição – Você deve dar o crédito apropriado, prover um link para a licença e indicar se foram feitas mudanças. Isso pode ser feito de várias formas sem, no entanto, sugerir que o licenciador (ou licenciante) tenha aprovado o uso em questão.
Sem restrições adicionais - Você não pode aplicar termos jurídicos ou medidas de caráter tecnológico que restrinjam legalmente outros de fazerem algo permitido pela licença.